"Those of us that have been entrusted with precious children have been given a sacred, noble stewardship, for we are the ones God has appointed to encircle today's children with love and the fire of faith and an understanding of who they are,"
--Elder M. Russell Ballard of the Quorum of the Twelve
As I have read and read those words they have give me peice of mind knowing that Heavenly Father has ENTRUSTED Paul and I with Tanner.
WOW!!!! Heavenly Father knows our thought and our prayers that we share with him. Our dreams for all of our kids. He knows the hardships we will go through and he still has
Us with one of his MOST precious of Children..
That is the MOST rewarding yet scarey feelings..
I continue each day to pray that where I take Tanner and who we see will be the one that will help us and help Tanner to be as independent as possible. SO we are seeing 3(yes more Doctors)!We are in the mist of yet another group of Doctors trying to find out what is really going on with Tanner.
They want him to see a Genetics Specialist, Urologist, Psych Doctor, and the list goes on..
OHH... how grateful am I to the PCMC team. They have not skipped a beat with him. Now that I have someone that is FINALLY listening we may someday get answers.
BUT, there is HUGE part of me that feels I am starting this entire process over again. I wish I didnt already know what I do know, I wish it was like a clean slate. Because I find myself saying well why didnt this Doctor do this?? Why didnt this Doctor do that?? How much time Have I lots that we could of had for therapies to help Tanner be more "socially" appropiate?? And that is what makes me so angry.
ANGRY that the 15 Doctors I talked to when he was younger told me NOTHING was wrong with him. That I needed to stop comparing him to other children. We lost so many YEARS fighting those Doctors. How thankful I am for the ONE Doctor that listened that got me set in the right direction. We are always pressing forward to find out more about his "condition". They all have agreed on one thing though... TANNER IS A DIFFICULT CASE!!!!.. At least we are going somewhere. RIGHT??